Watch Medical Director Dr. Richard Molteni discuss “The Benefits of Breastfeeding” on KONG’s Seattle Live.
The summer in the RED is the culmination of more than eight years and 30 surgeries to correct the deformities of Crouzon Syndrome.
Most cosmetic surgeries manipulate the skin or one feature of the face but leave patients looking like modified versions of themselves. Brenna’s surgery has changed the gestalt of her face. Two centimeters — nearly an inch — make a big change in the close quarters of a face.
A month has passed since surgeons, including Dr. Richard Hopper, at Seattle’s Children’s Hospital & Regional Medical Center peeled back the skin of Brenna’s face and sawed through her underdeveloped facial bones.
They severed Brenna’s upper jaw, cheekbones and eye orbits, then wired them to a purple titanium halo called a Rigid External Distraction system, or RED.
Bit by bit, Brenna’s bones have been cranked forward by the device, correcting the bowl-shaped profile of Crouzon Syndrome.
Brenna was diagnosed with Crouzon Syndrome, a genetic skull defect that occurs in about 1 in 25,000 births. “If you think of the genome as the Encyclopedia Britannica, then her mutation is a single wrong letter in a single word,” says Dr. Michael Cunningham, director of the Craniofacial Center at Children’s Hospital.
Watch Medical Director Dr. Richard Molteni discuss “Attention Deficit Hyperactivity Disorder (ADHD) ” on KONG’s Seattle Live.
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